"katy" wrote in message
...
Maxprop wrote:
"katy" wrote in message
...

Martin Baxter wrote:

katy wrote:


Well, it's about time I revealed the big secret before someone slips
one
of these days. I am progressively going blind (congenital disease)


Jeeze Katy I'm sorry to hear that. Here I was getting ****ed of because
my presbyopia is still worsening, but glasses are way better than blind.

"I complained because I had no shoes, until I met a man with no feet"

Here's hoping medical science comes up with something for you.

Cheers
Marty

They're working on stem cell reserach to regrow the macula but it is a
long way off....they can get it to grow but they can't get it to stop
growing...I'll be dead before they get it right but at least my grandkids
who ahve the same problem will ahve a chance...


I wasn't aware you have macular degeneration, Katy. Do you know
specifically what type? Is it exudative or dry? And have they tried
anti-VEGF therapy?

Max
Has been exudative in the past..during pregnancies mostly and one time
around 1984 (that's when I also ahd the retinal detachment and had the
cryo and the weld) Has been dry since...and no...I ...I am diagnosed as
dystrophic...I have juvenile macular degeneration with High myopia and
coloboma (not the cat eyed type but the optic nerve type where the back
lkof the eye hasn't closed...)

I know what it means. Didja forget what I do? Or were you elucidating for
the masses?

and no..that therapy isn't available to me (and believe me, I have been to
some of the best retinal specialists in the US)...

If your maculopathy is non-exudative, anti-VEGF isn't an option. For the
masses, VEGF is a substance released by necrotic (dying or dead) tissue
which stimulates neovascular proliferation. New blood vessels grow into
areas where they cause problems from leakage, such as under the macula.
Anti-VEGF therapy tends to inhibit the process before it begins.

My first bout of wet was at the age of 19, but it cleared up soon
after...I spent my 20th year unable to drive or read and then it cleared
up...has been a seesaw ever since with long periods of remission...I have
been lucky...

If you re-enter a period of wet maculopathy, ask about anti-VEGF drugs.

Max